Crohn's Liver Stomach Problems and Autoimmune Hepatitis

Got to go to a Cowboys Game!

My liver enzymes were high at last two Remicade infusions.  After several tests I had a liver biopsy last Thursday.  Results are that I have autoimmune hepatitis.

I had an endoscopy yesterday and it showed inflamation in my stomach and duodenum.  This explains the severe stomach pain I've had since before Thanksgiving.

I had a HIDA Scan this morning and will find out the results later.  I am RADIOACTIVE! :-) for a day anyway.

Migraines also started back up in the last week.  I've had three.  So basically I've been a GIANT MESS. 

Leaving for a Christmas Cruise tomorrow and hopefully I've got all the medications I need to get me through this one.  I feel like I've been living at the hospital for the last week and will be glad to get away from all the procedures and have some much needed rest.

All Packed LOL

Thanks for listening!

Still Going Strong

Yikes!! Sorry It's been a while since my last post.  Sometimes life gets in the way, and sometimes I just get lazy.  Yes, headaches have been a constant problem for me.  Not just headaches but Migraines too and the doc recommended I go straight to the migraine medicine (Relpax) and avoid the ibruprofen.  The headaches seem to become more frequent the week before and after my infusions.  They gave me Solu-Medrol at my last two infusions which did stop the headaches from coming for a week or so after infusion.

I would say my Crohn's is in remission.  The Remicade has really worked.  Cramps are gone completely.  No more fevers and I've been able to travel as well.  I even went on a cruise!


Leaving Port

It was wonderful not having to worry about where the nearest bathroom was or how long I would be away from one.  I was very careful about fully sanitizing my room with Lysol and very careful in the restaurants and buffet lines.  Lots of hand sanitizer all the time just to be safe because a cruise is where all my problems began 6-1/2 years ago. 

 

Zip Lining

I will continue to keep you posted.  Thanks for listening!!

Remicade Headaches?

Just noting that I've had headaches every day since my Remicade infusion.  Two have woken me up in the middle of the night.  Hopefully they will subside soon.  Anyone else have this experience?